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Part Deux: A Rebuttal to PHR Luddites

April 23, 2011 /

DnaBy now most people understand the promise of pharmaceuticals being customized to “YOU” based on your individual genetic code.  While this isn’t prevalent today, we understand that this will be possible in a few years.

Let’s take a minute to consider the mechanics of how this will occur. You’ve received a prescription, and it directs the pharmacist to tailor the medicine to YOUR genetic profile.

Consider two possible scenarios of how this transaction might happen. You’re on the phone with your pharmacist:

1) “OK, you need my DNA sequence. I keep my genetic profile in my mattress…let me get it and I’ll read it out loud to you.  C, A, T, G, G, A, T… no,  that was actually a G…let me start over.  C, A, T, G, G, A, T… (19 hours later) … T, and G. Can you read that back to me to make sure you got it right?”

2) “You have permission to access my DNA sequence at my health URL (or maybe a health record bank, or perhaps hand her a flash drive, or ??).

Still think you’ll never use a PHR?

This work is licensed under a Creative Commons Attribution-Share Alike 3.0 Unported License. Feel free to republish this post with attribution.

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7 Comments

  1. Vince Kuraitis on April 23, 2011 at 11:22 am

    Part Deux: A Rebuttal to #PHR Luddites. http://bit.ly/eEfu0b. Part One at http://bit.ly/eAYYFT #HealthIT #EHR



  2. Alltop Health on April 23, 2011 at 12:01 pm

    Part Deux: A Rebuttal to PHR Luddites http://bit.ly/dUEYTy



  3. Netspective Health on April 23, 2011 at 12:03 pm

    Part Deux: A Rebuttal to PHR Luddites http://goo.gl/fb/uZERK #HIT #HealthIT



  4. Barbara Duck on April 23, 2011 at 1:21 pm

    Also just last week Francis Collins spoke out about genomic information in health records with a video and they are looking into adding the ability to store images as well at the NIH. I still go back to my same old argument about no role models and thus so asked the question in a post, “Does Francis Collins use a PHR”, “Does the Surgeon General use the Surgeon General’s PHR”?

    I think these are important issues because it takes time for anyone to learn how they work and see the value and it is sad how we have no role models in government, but rather a paradigm on fathering the focus on “its for those guys over there”.

    http://ducknetweb.blogspot.com/2011/04/francis-collins-on-personalized.html

    We live in a social network web today so what are “those guys over there who work for the government” doing for their own PHRs? Inquiring minds would like to know and the public would certainly benefit with their contributions and offer some real value I feel.

    Who do you want to have teach you how to drive a car, someone who read a book about it but has never driven a car, or someone who actually has experience driving a car:) We have too many experts who themselves are “non participants” here and yet the judging and criticism continues, sad.



  5. Alltop Health on April 23, 2011 at 6:01 pm

    Part Deux: A Rebuttal to PHR Luddites http://bit.ly/dUEYTy



  6. Aparna M K on April 23, 2011 at 6:03 pm

    Part Deux: A Rebuttal to PHR Luddites | e-CareManagement Blog http://dlvr.it/PTphG



  7. e-Patient Dave on April 23, 2011 at 6:13 pm

    I betcha when most Luddites think about PHRs, they don’t think about it including this kind of information.

    Good example of how humans (pro and con) tend to form a point of view before they’ve fully thought things through, especially as possibilities evolve.