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privacy

goldilocks + porridge

Health Data Outside HIPAA: Simply Extending HIPAA Would Be a #FAIL

Health Data Outside HIPAA: Simply Extending HIPAA Would Be a #FAIL

goldilocks + porridge

Protecting Health Data Outside of HIPAA: Will the Protecting Personal Health Data Act Tame the Wild West ?

Congress is seriously considering bipartisan legislation — the “Protecting Personal Health Data Act” — to better protect the privacy of consumers’ personal data.

goldilocks + porridge

Health Data Outside HIPAA: The Wild West of Unprotected Personal Data

The average patient will, in his or her lifetime, generate about 2,750 times more data related to social and environmental influences than to clinical factors.

goldilocks + porridge

Pending Federal Privacy Legislation: A Status Update

The buzz around federal privacy legislation continues, but as of yet there appear to be no proposals or bills that have emerged as the lead bills.
Despite the perceived lack of movement of current bills, the ticking clock on the California Consumer Privacy Act (CCPA) suggests this issue is quite live in Congress, albeit less visible to most of us.

thcb

New Series on THCB — The Health Data Goldilocks Dilemma: Privacy? Sharing? Both?

The Goldilocks Dilemma has U.S. policymakers driving toward two seemingly conflicting goals:
1) Broader data interoperability and data sharing, and
2) Enhanced data privacy and data protection.

Rubio-Bill

For Your Radar — Huge Implications for Healthcare in Pending Privacy Legislation

The U.S. Congress is considering broad privacy and data protection legislation in 2019. There is some bipartisan support and a strong possibility that legislation will be passed. Federal privacy legislation would have a huge impact on all healthcare stakeholders, including patients.

Could Facebook Be Your Platform for Care Coordination?

My guess is you’ve probably never asked yourself this question. A quick preview:

Technical barriers aren’t the limiting factors to Facebook becoming a care coordination platform.
Facebook’s company DNA won’t play well in health care.
Could Facebook become the care coordination platform of the future? If not Facebook, then what?

1) Technical barriers aren’t the limiting factors to Facebook as a care coordination platform.

Can you imagine Facebook as a care coordination platform? I don’t think it’s much of a stretch. Facebook already has […]

Crowdsourcing the Future: Health 2.0 and HIPAA

Deven McGraw is the Director of the Health Privacy Project at the Center for Democracy & Technology. 

The Health 2.0 movement has seen incredible growth recently, with new tools and services continuously being released. Of course, Health 2.0 developers face a number of challenges when it comes to getting providers and patients to adopt new tools, including integrating into a health system that is still mostly paper-based. Another serious obstacle facing developers is how to interpret and, where appropriate, comply with […]

Comments to ONC: PCAST HIT Report Becomes a Political Piñata

The PCAST Report on Health IT has become a political piñata. 

Early Feedback on PCAST 

Like many of my colleagues, I was taken aback by the release of the Report in early December 2010 — I didn’t know quite what to make of it. Response in the first week of release was: 

Limited. The first commentaries were primarily by technical and/or clinical bloggers. The mainstream HIT world had remarkably little initial reaction to the Report. 
Respectful of the imprimatur of “The President’s” Report and noting some of the big names associated with the […]

Walled Gardens vs. the Open Web: A Central Debate in Tech Finally Coming to Healthcare

The September issue of Wired magazine and an article in last Sunday’s New York Times illustrate a central debate in technology circles. The debate is not new — it’s being going on for two decades — but it has newfound vibrancy. The essence of the debate is about competing tech/business models: walled gardens vs. the open world wide web (web).

 

vs.

 

The debate is highly controversial and nuanced. There are “experts” on both sides.

My point today is not to take sides […]